News

LATEST BREAKING Research of Interest for HAE with normal C1 inhibitor
Jul 28, 2015

There has been a recent study of note that we would like to bring to your attention: Defective glycosylation of coagulation factor XII underlies hereditary angioedema type III by Jenny Bjorkqvist et al published in the Journal of Clinical Investigation this month The investigators were able to show that the point mutation at codon 309 […]

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July 2015 News From the Center
Jul 15, 2015

Greetings from the US HAEA Angioedema Center, We hope that all of you are enjoying the summer. It is a great time to start practicing for the HAE In Motion 5K Walk Run—a first ever event following the HAEA Patient Summit in October in Denver Colorado. I am excited to report that we are beginning […]

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June 2015 – AE Center Clinical Trials
Jun 29, 2015

We continue to expand the clinical research program at the US HAEA Angioedema Center. Our site has been active in the CSL subcutaneous C1INH for HAE prophylaxis study and we are now excited to be enrolling in the BioCryst oral kallikrein inhibitor for HAE prophylaxis study. Both of these current programs hold promise for improved […]

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June 2015 – What’s new at the Center

We appreciate the opportunity to continue to partner with you and your physicians for your angioedema care. We are excited to report that we have received approval for our study of HAE with normal C1 inhibitor. We are currently enrolling patients that we have seen here at the Center—unfortunately we do not have the funding […]

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May 2015 – What’s New at the Center
May 29, 2015

What’s New At The Center? News from the US HAEA Angioedema Center, May 2015 First of all we would like to wish all of you a ‘Happy HAE Day’.  We hope you enjoy the photo of our staff ‘sharing our smiles’.  We find all of the activity and energy from the HAE community to raise awareness and […]

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Mt. Kilimanjaro Climbed for HAE – “Kili Care Climb”
Sep 11, 2014

Drs. Zuraw and Christiansen and Mr. Caesar Sweitzer–a long-time friend, and financial advisor to the HAEA Board of Directors, who has witnessed first-hand Drs. Zuraw and Christiansen’s hard work and perseverance in HAE research – climbed Mt. Kilimanjaro this past July (2014) with the sole objective of helping HAE patients. The intrepid climbers traveled to […]

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